The story of Patience, a severely disabled young woman, and her family’s decision to enter her into a pioneering but risky gene therapy trial.

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SKU: 9781800240889 Category: Tag:


Booksellers’ Association Book of the Month
A LoveReading Debut of the Month and Book Club Recommendation

‘Inspired by truth, Patience and her family come alive on the pages. I felt every single emotion with them’ – Alice Peterson, author of Monday to Friday Man

‘An extraordinary novel about love and hope and family and what happens in the space between the words. I adored it’ – Kirsten Hesketh, author of Another Us

If you were offered a chance to cure your child’s disease, would you take it?

‘A thought-provoking, compelling and entertaining read. I could barely put the book down until its equally heart-wrenching and heart-warming ending. A wonderful, smart and funny book – I know readers will absolutely love it’ – Louise Fein, bestselling author of People Like Us

The Willows have been through a lot. Louise has devoted her life to caring for her disabled youngest daughter. Pete works abroad, almost never seeing his loved ones. And their eldest, Eliza, is burdened by all the secrets she’s trying to keep from her overloaded family.

Meanwhile, Patience observes the world while trapped in her own body. She laughs, she cries, she has opinions and knows what she wants. But those who love her most – and make every decision about her life – will never know.

Or will they? When the Willows are offered the opportunity for Patience to take part in a new gene therapy trial to cure her Rett syndrome, they face an impossible dilemma. Are the very real risks worth the chance of the reward, no matter how small?

Additional information

Weight 0.612 kg
Dimensions 22.8 × 14.5 × 4.1 cm










Hardback original


823.92 (edition:23)


General – Trade / Code: K